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BBMRI: Biobanking and Biomolecular Resources Research Infrastructure

Abstract
Biomedical quality-assessed samples and data as well as biomolecular resources and molecular analysis tools are essential for academic and industry-driven research to treat and prevent human diseases. Although currently established national biobanks and biomolecular resources are a unique European strength, valuable collections typically suffer from fragmentation of the European biobanking-related research community. This hampers the collation of biological samples and data from different biobanks required to achieve suffcient statistical power. Moreover, it results in duplication of effort and jeopardises sustainability due to the lack of long-term funding.

BBMRI will comprise:
*biobanks of different formats
*biomolecular resources
*enabling technologies and high-throughput analysis platforms and molecular tools to decipher gene, protein and metabolite functions and their interactions
*harmonized standards for sample collection, storage, preanalytics and analysis
*harmonized databases and biocomputing infrastructure
*ethical, legal and societal guidance platform
Project Leader:
Zatloukal Kurt
Duration:
01.02.2008-31.01.2011
Programme:
EU (FP-7)
Subprogramme
FP7-INFRASTRUCTURES-2007-1, INFRA-2007-2.2.1.16: European Biobanking and Biomolecular Resources
EU-Project Instruments
Coordination and Support Action (Coordination)
Type of Research
tech development
Staff
Zatloukal, Kurt, Project Leader
Bonvecchio, Karin, Co-worker
Mayrhofer, Michaela, Co-worker
Andracher, Christina, Co-worker
Hagauer, Sandra Maria, Co-worker
MUG Research Units
Diagnostic and Research Institute of Pathology
Project partners
Academisch Ziekenhuis Leiden, Netherlands
Alleanza contro il cancro, Italy
BIOS Research Centre for the Study of Bioscience, Biomedicine, Biotechnology and Society, United Kingdom
Bundesministerium für Wissenschaft und Forschung, Austria
Bundesministerium für Wissenschaft und Forschung, Germany
Center for Economics and Social Aspects of Genomics, United Kingdom
Comitato Nazionale per la Biosicurezza, le Biotecnologie e le Scienze della Vita, Instituto Superiore di Sanita, Italy
deCODE genetics, Iceland
Dutch Federation of University Medical Centers, Netherlands
EGP of the University of Tartu, Estonia
Ensembl Functional Genomics, European Genotype Archive, United Kingdom
Erasmus MC-Daniel den Hoed Cancer Center, Netherlands
Federation hospitalière de France, France
Fondazione Telethon, Italy
Fraunhofer Gesellschaft zur Förderung der angewandten Forschung e.V., Germany
Fundación para el desarrollo de la investigación en Genómica y Proteómica, Spain
Geneservice Ltd, United Kingdom
Helmholtz Gemeinschaft, Germany
INSERM, France
Institut National du Cancer, France
Institute for Biomedical Technologies, Italy
Instituto de Salud Carlos III, Spain
Instituto Nazionale per la Ricerca sul Cancro, Biological Bank and Cell Factory, Italy
International Agency for Research on Cancer, France
Irish Clinical Research Infrastructure Network, Ireland
J.A. Bovenberg Legal Pathways Institute for Bio-Law i.o., Netherlands
Karolinska Institut, Sweden
Life Science Governance Institute, Austria
Max-Planck-Institute for Molecular Genetics, Germany
Medical Research Council, United Kingdom
Ministry of Education and Research, Estonia
Ministry of Education, Culture and Science, Netherlands
National DNA Bank, University of Salamanca, Spain
National Public Health Institute, Finland
National Research Center for Environment and Health, Germany
Norwegian Institute of Public Health, Norway
Norwegian University of Science and Technology, Norway
Research Infrastructure and Special Initiatives Unit Health Research Board, Ireland
RZPD German Resource Center for Genome Research, Germany
Semmelweis University Budapest, Hungary
The Icelandic Centre for Research, Iceland
The Netherlands Organisation for Health Research and Development, Netherlands
UK Biobank Ltd, United Kingdom
Universität Wien, Austria
University Hospital Groningen, Netherlands
University of Malta, Malta
University of Manchester, United Kingdom
Uppsala University, Sweden
VITRO Ltd, Spain
Funded by
Europäische Kommission, Rue de la Loi, Brussels, Belgium
Project results published
> Auf dem Weg zur personalisierten Medizin. Wie BBM... human.technology.styria. botenstoff 04.14. 2014. 04.14: 3-5.
> Biobanques Le patient recomposé... Le Monde Science&médicine. 2014.
> Role of Biobanks in Personalized Medicine... KHCCBIO Conference; APR 10-12, 2014; Amman, JORDAN. 2014.
> The 50 year roadmap for the future of medicine: su... Global Science Collaboration: Science Capacity Building & the Implications for the Development Process; JUN 27-28, 2013; Addis Abeba, Ethiopia. 2013.
> European and other international governance initia... 4th Symposium of the Swiss Clinical Trial Organisation (SCTO) and the University Hospitals Geneva (HUG); JUN 20, 2013; Geneva, Swiss. 2013.
> BBMRI: focussing on the present status of the pro... Symposium - EU Research Infrastructure networks in biomedical sciences and national research centers in Turkey: prospects of collaboration; Feb 7-8, 2013; Izmir, TURKEY. 2013.
> Die Beteiligung österreichischer Universitäten an ... Rektorat - Medizinische Universität Innsbruck; Jän 31, Feb 01, 2013; Innsbruck. 2013.
> The Biobanking and Biomolecular Resources Research... Global Science Collaboration: Science Capacity Building and the Implications for the Development Process; JUN 27-28, 2013; Addis Abeba, Ethiopia. 2013.
> An update on the BBMRI-ERIC project... ESBB Annual Meeting; OCT 8-11, 2013; Verona, ITALY. 2013.
> Presentation and Interview Biobanking and Biomolec... Ad hoc panel review proposal BBMRI; DEZ 3-4, 2013; Brussels, BELGIUM. 2013.
> BBMRI expert centres & public/private partnership... Brocher Workshop ; JUN 12-14, 2013; Genf. 2013.
> European perspective on biobanking... Methodology of cancer clinical trials; Dezember, 12-13,2012; Brussels, BE. 2012.
> Metabolic disorders in interaction with cancer: li... Multiscale systems biology cancer Workshop; November, 12-13, 2012; Leiden, NETHERLANDS. 2012.
> Sustainability:ESFRI integration... EVA-BBMRI Meeting; Dezember, 6, 2012; Berlin, GERMANY. 2012.
> Challenges in member state engagement to establish... ESFRI Implementation Workshop; September, 4, 2012; Brussels, BE. 2012.
> The effects of Tissue biobank on translational med... 2nd annual Biobank China - Ethics Construction and information management for biobank; Juli, 5-8, 2012; Shanghai, China. 2012.
> Addressing global health challenges through resear... European Health Forum - Gastein; Oktober, 4-5, 2012; Gastein. 2012.
> standards and regulation in biological and medical... Presentations of IT FoM, BBMRI, ECRIN and ERINHA; Juni, 4-6, 2012; Washington DC, USA. 2012.
> Biobanking and the future of medicine & standardiz... China Biobank development Strategy Workshop; Nov, 08-11, 2102; Shanghai, China. 2012.
> Biobanks a key resource for Biomarker Development... Biomarker Symposium; Oktober, 3, 2012; Wien. 2012.
> International Network of Biobanks and Expert Centr... National Cancer Institute Directors Meeting; Juli, 11,2012; Lyon, FRANCE. 2012.
> Transborder flows of samples an daccompanying data... Biobanks and Biomedical collections -an ethical framework for future research; Juni, 18-20 2012; Straßburg. 2012.
> The role of biobanking in personalized medicine... Translational Reserch in Oncology - a new approach to personalized medicine; Mai, 8-9, 2012; Forli, ITALY. 2012.
> How to Improcve Interoperability of Biobankds: Eur... European Lab Automation; MAY 30-31, 2012; Hamburg, GERMANY. 2012.
> The European Biobanking and Biomolecular Resources... International Symposium - National Biobank of Korea; April 25-27, 2012; Korea. 2012.
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