Medizinische Universität Graz Austria/Österreich - Forschungsportal - Medical University of Graz

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SHR Neuro Krebs Kardio Lipid

Zimmermann, K; Cignacco, E; Engberg, S; Ramelet, AS; von der Weid, N; Eskola, K; Bergstraesser, E; PELICAN Consortium; Ansari, M; Aebi, C; Baer, R; Popovic, MB; Bernet, V; Brazzola, P; Bucher, HU; Buder, R; Cagnazzo, S; Dinten, B; Dorsaz, A; Elmer, F; Enriquez, R; Fahrni-Nater, P; Finkbeiner, G; Frey, B; Frey, U; Greiner, J; Hassink, RI; Keller, S; Kretschmar, O; Kroell, J; Laubscher, B; Leibundgut, K; Malaer, R; Meyer, A; Stuessi, C; Nelle, M; Neuhaus, T; Niggli, F; Perrenoud, G; Pfammatter, JP; Plecko, B; Rupf, D; Sennhauser, F; Stade, C; Steinlin, M; Stoffel, L; Thomas, K; Vonarburg, C; von Vigier, R; Wagner, B; Wieland, J; Wernz, B.
Patterns of paediatric end-of-life care: a chart review across different care settings in Switzerland.
BMC Pediatr. 2018; 18(1): 67-67. [OPEN ACCESS]
Web of Science PubMed PUBMED Central FullText FullText_MUG

 

Autor/innen der Med Uni Graz:
Plecko Barbara
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Abstract:
Paediatric end-of-life care is challenging and requires a high level of professional expertise. It is important that healthcare teams have a thorough understanding of paediatric subspecialties and related knowledge of disease-specific aspects of paediatric end-of-life care. The aim of this study was to comprehensively describe, explore and compare current practices in paediatric end-of-life care in four distinct diagnostic groups across healthcare settings including all relevant levels of healthcare providers in Switzerland. In this nationwide retrospective chart review study, data from paediatric patients who died in the years 2011 or 2012 due to a cardiac, neurological or oncological condition, or during the neonatal period were collected in 13 hospitals, two long-term institutions and 10 community-based healthcare service providers throughout Switzerland. Ninety-three (62%) of the 149 reviewed patients died in intensive care units, 78 (84%) of them following withdrawal of life-sustaining treatment. Reliance on invasive medical interventions was prevalent, and the use of medication was high, with a median count of 12 different drugs during the last week of life. Patients experienced an average number of 6.42 symptoms. The prevalence of various types of symptoms differed significantly among the four diagnostic groups. Overall, our study patients stayed in the hospital for a median of six days during their last four weeks of life. Seventy-two patients (48%) stayed at home for at least one day and only half of those received community-based healthcare. The study provides a wide-ranging overview of current end-of-life care practices in a real-life setting of different healthcare providers. The inclusion of patients with all major diagnoses leading to disease- and prematurity-related childhood deaths, as well as comparisons across the diagnostic groups, provides additional insight and understanding for healthcare professionals. The provision of specialised palliative and end-of-life care services in Switzerland, including the capacity of community healthcare services, need to be expanded to meet the specific needs of seriously ill children and their families.
Find related publications in this database (using NLM MeSH Indexing)
Adolescent -
Child -
Child, Preschool -
Community Health Services - statistics & numerical data
Cross-Sectional Studies -
Female -
Hospitalization - statistics & numerical data
Humans -
Infant -
Infant, Newborn -
Male -
Palliative Care - statistics & numerical data
Pediatrics -
Practice Patterns, Physicians' - statistics & numerical data
Retrospective Studies -
Switzerland -
Terminal Care - methods
Terminal Care - statistics & numerical data

Find related publications in this database (Keywords)
End-of-life care
Terminal care
Paediatrics
Neonatology
Child
Practice patterns
Retrospective studies
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