Selected Publication:

SHR Neuro Cancer Cardio Lipid Metab Microb

Smith, C; Chadwick, HK; Shaw, N; Farinha, CM; Southern, KW; Landau, E; Mei-Zahav, M; Havermans, T; Borawska-Kowalczyk, U; MacDuff, N; Bentley, S; Stanford, G; Declercq, D; Urquhart, DS; Radtke, T; De, Wachter, E; Hill, K; Dunlevy, F; Reilly, CM; Schwarz, C; Wagner, M; Tomlinson, O; Peckham, DG.
Development of a multidisciplinary syllabus to support the education and training of roles in cystic fibrosis care: An ECFS Education initiative.
J Cyst Fibros. 2025; Doi: 10.1016/j.jcf.2025.11.012
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Co-authors Med Uni Graz

Wagner Marlies

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Abstract:

BACKGROUND: Clarity and consistency of required knowledge and skills is crucial in supporting the development of members of cystic fibrosis (CF) multidisciplinary teams. Syllabi are effective frameworks for delivering a more uniform and evidence-based approach to high quality holistic care and research. METHOD: Expert group representatives of the European Cystic Fibrosis Society (ECFS) Education Committee developed multiple speciality focused syllabi to define relevant core knowledge and skills. Contributors from a range of CF disciplines and countries reviewed each syllabus, which were further edited by members of the relevant ECFS speciality / working groups. RESULTS: Nine syllabus frameworks were developed and ratified for medicine, physiotherapy, nursing, pharmacy, psychosocial, exercise, nutrition, clinical trials and fundamental and translational science. DISCUSSION: Multiple challenges exist when developing and applying international syllabi. Examples include disparities in economics, health care infrastructure, available resources, and differing roles and responsibilities. By tapping into a broad international knowledge base, we were able to develop a clear framework for both comprehensive training and ongoing continuous professional development. These syllabi will support the further harmonisation of training and enhance education for both clinical and academic CF health care professionals across Europe.

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